"See me as a person first..... I control what I create.... This was the turning point for me, when in the beginning, I had lost total control of the direction my life was heading. I could not control my day, my symptoms or how the illness was evolving, Focusing on what I could do versus what I couldn't gave me a sense of purpose and achievement. It helped me to regain some control over being dominated by the illness. It was a form of emotional self-regulation that helped me to learn to walk past old expectations and standards set by my 'pre-illness' self to find a new version of me. Reflecting on that may prove useful to those who are going through a similar situation".